Redefining HCP Relevance in Rare Disease
Why claims-only targeting is holding rare disease strategy back
A real-world study showing how claims-only targeting misrepresents HCP relevance and how a clinically informed approach changes everything.
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Claims ≠ Care - Billing events don’t capture or reflect ongoing clinical responsibility.
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The Invisible Work - Most rare disease care happens outside of the claims system.
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The misdirection - You’re investing in the wrong HCPs.
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Relevance is Misranked - The right HCPs ranked in the wrong order.
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From Lagging to Leading - Stop predicting the future with the past.
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Where opportunity lives - Growth sits with HCPs still shaping decisions.
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Redefine relevance - Focus on who is actively managing patients today.
Author(s): Scott Philips, VP of Real World Data, with contributions from Patrick Mullaney, Real World Data Audience Partnerships Lead
Year: 2026
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