Redefining HCP Relevance in Rare Disease

Why claims-only targeting is holding rare disease strategy back

A real-world study showing how claims-only targeting misrepresents HCP relevance and how a clinically informed approach changes everything.

 

  • Claims ≠ Care - Billing events don’t capture or reflect ongoing clinical responsibility.

  • The Invisible Work - Most rare disease care happens outside of the claims system.

  • The misdirection - You’re investing in the wrong HCPs.

  • Relevance is Misranked - The right HCPs ranked in the wrong order.

  • From Lagging to Leading - Stop predicting the future with the past.

  • Where opportunity lives - Growth sits with HCPs still shaping decisions.

  • Redefine relevance - Focus on who is actively managing patients today. 

Author(s): Scott Philips, VP of Real World Data, with contributions from Patrick Mullaney, Real World Data Audience Partnerships Lead

Year: 2026

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